1/10/2020 3am
Lauren Mihok- Jan 10, 2020
- 2 min read
Everything the last few weeks had been really good with chemo and radiation. Yesterday around 7pm, Josiah and I were just relaxing at the apartment when he stood up and said, “I’m having a feeling.” i told him to come outside with me, and he kept saying he feels so scared. I tried to talk him through it, and then he said he was having the metallic taste in his mouth and spice smell like his old seizures used to be. He was feeling tightness in his head, and was having some confusion. I took him to the ER at Sandy Springs Northside, and these feelings were still going on for him. His old seizures with the same symptoms were like this, but only last 1 minute. By the time we got to Northside, it had been going on an hour. They gave him a type a sedative because he was scared and still having the seizure. His blood oxygen levels were low so they put him on oxygen. By this point its 8:30pm. They ordered a CT scan but took forever to take him back for it. While we were waiting for them to take him, he dozed off and on. When he woke up, he would start saying really odd things. Mentioning a kids face and reciting his phone number. He would mentions stories that made no sense. On and off he’d say he was having the taste and smell again and tightness on his head where the surgery was. At one point he asked what they did to his head tonight on that side because of how tight it was. At 12am they took him for the CT scan. More sitting, and they finally got us in a room by 2am. They gave him a shot in his stomach so he won’t get a blood clot from laying in bed nonstop in the hospital. Most doctors and nurses this experience have been rude and incompetent which is really hard to handle on top of everything. We have had a couple really great ones though. He’s sleeping now, and when he woke up briefly not long ago, he was speaking normally so that’s good. Waiting until the morning to get the CT results back. Please pray for him. Just when we were so happy with how well he’s been doing, this happens out of nowhere. It scares me the seizure lasted so long this time and happened back to back. please pray for God’s healing. This is so hard to handle.
tampatammylynn
an hour ago
Praying so hard for Josiah - hoping the hospitalization this week is not an indication of a setback. Praying God’s hand will be on Josiah healing him. May God receive the glory for great things He can and will do.
Remember the brain is a sensitive organ. Chemo and radiation can cause swelling & even healing within the brain can trigger feelings & reactions. (My Dad went thru this). Is the team treating him now an Oncology team? that was my first reaction - do the current hands-on healthcare team have experience with those in process of cancer treatments?
Praying for you Lauren & for the whole family.
Josiah is covered in love and prayers.💕
Love…
One more comment I hope will be valuable. Hydration. Hydration was the key to my Dads recovery after treatments. On days he was not @ 100% for any reason, he would go to the closest infusion center and his Oncology Dr would Order a bolus of fluids via IV. He would snap back each time, we would marvel at how it made all the difference for him!! So simple, but he just couldn’t seem to drink enough on his own to avoid the event, but a simple hour on the IV for just hydration would get him going again as if we’d charged his battery! Headaches would subside, cognition & awareness increased, motor skills fine-tuned. Keep this in mind if…
Lauren and Josiah, I'm so sorry that you both have to go through this. It breaks my heart. I will be praying for rest and peace for you both, and that the doctors will have wisdom to treat this set back successfully.
Much love, Aunt Melanie