10/18/2024
Discharged today!!!! God is so good! Now to rest a couple more days in Houston so he can continue to heal and flying home Sunday ❤️
Discharged today!!!! God is so good! Now to rest a couple more days in Houston so he can continue to heal and flying home Sunday ❤️
Bandages are off and drain tube is out! He is feeling like a new man 🥰❤️🩹
Walking around like a pro! He still has the vision issue in his right eye, but he is compensating well for it. They will take his...
Josiah is doing SO well still. He has battled with some headaches of course, but they are giving pain meds for it. He can’t see anything...
I’m in the room with Josiah, and he is doing amazing! Praise God!!!!! He is speaking well, making jokes, and seems so normal❤️ He is...
Talked to the surgeon, and he is happy with how it went! Josiah is stable and won't need to be in the ICU. He thinks he got 90% or more...
I wish I had a more specific update at the moment. The surgery lasted 10 hours. We were told at 6 they were going to start closing him...
Over 6 hours into the surgery, and it is still going on! He is in the awake portion of the craniotomy now, and he is tolerating it well...
Surgery just began! He had to take a drug called Gleolan which is an optical imaging agent highlighting tumor cells which makes it easier...
Finally home!!! He is feeling back to how he was pre-seizure and stroke, just exhausted. We can't thank everyone enough for your prayers,...
It’s looking like his bleed is not getting worse from the imaging so that’s great! No emergency surgery needed prior to his scheduled...
It's been a long night. He was admitted to the neuro ICU around 4:30am finally. He is back to baseline now and is back to his normal...
Please pray for Josiah. Today around 5pm as I was leaving work in Lawrenceville, he called me while at the tennis courts with his dad. He...
Today was a FULL day of pre-op appointments for Josiah. He had a chest X-ray, EKG, an anesthesia assessment, 2 hour cognitive assessment,...
MRI showed the tumor had grown a little since the 9/3 scan. The ABTI imaging showed 4 out of 4 markers indicate that it is tumor and not...
We have gotten to enjoy ourselves this weekend in Houston and not worry about anything cancer 😁 Tomorrow 8am is another appointment with...
The neurosurgeon showed us the images from his 9/3 MRI and said the growth from last one in May to this one was deeply concerning. The...
Hi everyone! Sorry for the long wait. The waiting has been hard from us too trying to coordinate everything! There was a hold up from...
Good news - We got Josiah into MD Anderson! He has a telehealth appointment on Friday. That will solidly when we need to go out to...
I spoke with both Dr. Robinson’s team and Dr. Friedman at Duke today. Bother neurosurgeons do not think surgery is a good option for...