10/15/2024
Surgery just began! He had to take a drug called Gleolan which is an optical imaging agent highlighting tumor cells which makes it easier...
Surgery just began! He had to take a drug called Gleolan which is an optical imaging agent highlighting tumor cells which makes it easier...
Finally home!!! He is feeling back to how he was pre-seizure and stroke, just exhausted. We can't thank everyone enough for your prayers,...
It’s looking like his bleed is not getting worse from the imaging so that’s great! No emergency surgery needed prior to his scheduled...
It's been a long night. He was admitted to the neuro ICU around 4:30am finally. He is back to baseline now and is back to his normal...
Please pray for Josiah. Today around 5pm as I was leaving work in Lawrenceville, he called me while at the tennis courts with his dad. He...
Today was a FULL day of pre-op appointments for Josiah. He had a chest X-ray, EKG, an anesthesia assessment, 2 hour cognitive assessment,...
MRI showed the tumor had grown a little since the 9/3 scan. The ABTI imaging showed 4 out of 4 markers indicate that it is tumor and not...
We have gotten to enjoy ourselves this weekend in Houston and not worry about anything cancer 😁 Tomorrow 8am is another appointment with...
The neurosurgeon showed us the images from his 9/3 MRI and said the growth from last one in May to this one was deeply concerning. The...
Hi everyone! Sorry for the long wait. The waiting has been hard from us too trying to coordinate everything! There was a hold up from...
Good news - We got Josiah into MD Anderson! He has a telehealth appointment on Friday. That will solidly when we need to go out to...
I spoke with both Dr. Robinson’s team and Dr. Friedman at Duke today. Bother neurosurgeons do not think surgery is a good option for...
Hi friends. Yesterday, Dr. Robinson’s nurse called and Dr. Robinson (Josiah’s past brain surgeon) and the other doctors don’t think...
Josiah’s MRI results are back. There is a new glioblastoma tumor about the size of an eyeball that has grown quickly, and it is pressing...
MRI for Josiah tomorrow morning! Please pray that his brain looks beautiful and that there is no tumor/cancer growth whatsoever ❤️
We had the Telehealth appointment with Josiah's doctor this morning. No cancer/tumor growth confirmed! She is so pleased with how stable...
Josiah’s MRI was today. We have an update on his chart and from the PA. No new cancer growth or enhancement. Great news there. However,...
For those that have been wondering, I am SO sorry I never posted an update about Josiah's spectroscopy. To be fair, it took about 2 weeks...
Spectroscopy update: The doctor hasn’t called yet, but the report came out on MyChart. It says “Elevated choline to creatinine ratio in...
MRI looks great and stable! No changes from last time! The small sliver they treated with gamma knife is looking like necrosis scar...