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10/15/2024

Surgery just began! He had to take a drug called Gleolan which is an optical imaging agent highlighting tumor cells which makes it easier...

10/10/2024

Finally home!!! He is feeling back to how he was pre-seizure and stroke, just exhausted. We can't thank everyone enough for your prayers,...

10/9/2024 pt 2

It’s looking like his bleed is not getting worse from the imaging so that’s great! No emergency surgery needed prior to his scheduled...

10/9/2024

It's been a long night. He was admitted to the neuro ICU around 4:30am finally. He is back to baseline now and is back to his normal...

10/8/2024

Please pray for Josiah. Today around 5pm as I was leaving work in Lawrenceville, he called me while at the tennis courts with his dad. He...

10/2/2024

Today was a FULL day of pre-op appointments for Josiah. He had a chest X-ray, EKG, an anesthesia assessment, 2 hour cognitive assessment,...

9/30/2024

MRI showed the tumor had grown a little since the 9/3 scan. The ABTI imaging showed 4 out of 4 markers indicate that it is tumor and not...

9/29/2024

We have gotten to enjoy ourselves this weekend in Houston and not worry about anything cancer 😁 Tomorrow 8am is another appointment with...

9/25/2024

The neurosurgeon showed us the images from his 9/3 MRI and said the growth from last one in May to this one was deeply concerning. The...

9/22/2024

Hi everyone! Sorry for the long wait. The waiting has been hard from us too trying to coordinate everything! There was a hold up from...

9/10/2024

Good news - We got Josiah into MD Anderson! He has a telehealth appointment on Friday. That will solidly when we need to go out to...

9/9/2024

I spoke with both Dr. Robinson’s team and Dr. Friedman at Duke today. Bother neurosurgeons do not think surgery is a good option for...

9/7/2024

Hi friends. Yesterday, Dr. Robinson’s nurse called and Dr. Robinson (Josiah’s past brain surgeon) and the other doctors don’t think...

9/4/2024

Josiah’s MRI results are back. There is a new glioblastoma tumor about the size of an eyeball that has grown quickly, and it is pressing...

9/2/2024

MRI for Josiah tomorrow morning! Please pray that his brain looks beautiful and that there is no tumor/cancer growth whatsoever ❤️

5/6/2024

We had the Telehealth appointment with Josiah's doctor this morning. No cancer/tumor growth confirmed! She is so pleased with how stable...

5/1/2024

Josiah’s MRI was today. We have an update on his chart and from the PA. No new cancer growth or enhancement. Great news there. However,...

1/24/2024

For those that have been wondering, I am SO sorry I never posted an update about Josiah's spectroscopy. To be fair, it took about 2 weeks...

12/21/2023

Spectroscopy update: The doctor hasn’t called yet, but the report came out on MyChart. It says “Elevated choline to creatinine ratio in...

12/21/2023

MRI looks great and stable! No changes from last time! The small sliver they treated with gamma knife is looking like necrosis scar...

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