1/11/2020 5:15pm
Well we are home, and Josiah is resting! They prescribed him a second seizure medication called Oxycarbazepine. He’ll be taking this...
Well we are home, and Josiah is resting! They prescribed him a second seizure medication called Oxycarbazepine. He’ll be taking this...
His neurosurgeon Dr. Robinson is going to come by and talk with us tomorrow morning! We want to get his opinion on adding the other...
They took us from our room on the cancer floor around 3pm to a room on the neurology floor. The room is not nearly as nice, and Josiah...
CT scan came back normal which is frustrating because of how long he seized. So no answers as to why. His neurosurgeon’s PA came by and...
Everything the last few weeks had been really good with chemo and radiation. Yesterday around 7pm, Josiah and I were just relaxing at the...
Hey guys! I’ve been meaning to post for a couple days now, but life has been busy. Josiah had a good appointment with his oncologist...
Yesterday afternoon Josiah was not feeling too great. He was very achy and had a really upset stomach. He slept well last night and has...
Josiah has had a MUCH better day today. Thank you everyone for all the prayers. He didn’t throw up once! The only symptom he’s mentioned...
So he threw up pretty consistently every 10-20 min for hours. It was a total of 17 times. The Zofran helped him a good bit to where he...
So after a lot of back and forth with the pharmaceutical company who kept delaying delivery for his chemotherapy pills (Temodar), it was...
Today was supposed to be his first day or radiation, BUT the pharmaceutical company sending his Temodar (chemo pills) didn’t get it sent...
We’re happy to be home! Honey always makes him feel so much better. We watched Frozen and ate some popcorn tonight! He’s feeling a lot...
Josiah‘s getting discharged! The neurologist came in and said his EEG results had sharp movements in his left temporal lobe where the...
Josiah is doing okay. He's having nonstop eye twitches again and is mad they still have IVs in his arm. They put foam around the sides of...
He came back from his MRI not long ago. We probably won’t get results back until tomorrow. Just going to try to rest as much as possible...
He’s doing some better, just still very tired. They’re doing an EEG on him right now (not EKG that I said in last post). Still haven’t...
Please pray for Josiah. He woke me up at 5 in the morning shouting at me, “I’m leaving, im leaving.” He said he felt like he was slipping...
Today Josiah spoke with the company he’s getting the chemo pills from. They will be able to deliver it to our door. Crazy world we live...
Hi guys! Today we met with Dr. Volas-redd, the neuro-oncologist. They’re located at the Georgia Cancer Specialists in Marietta,...
Hi everyone! Since we got the news of Josiah's grade 4 Glioblastoma, we have felt so loved and supported from friends and family. We...